To save nice heart the best would be doing nothing (! We also sign a school waiver every year. I was just curious if there any way to know if my valve is affecting my times at all? Seems unlikely to me that there would be lingering effects that would make an EKG or chest x-ray abnormal. That would include weightlifting. His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. What is a TAVR? Ive a BAV with the fusion being between my right coronary and non-coronary leaflets. Athletes with mechanical or bioprosthetic heart valves may participate in low and moderate intensity sports, Athletes who are taking blood-thinning medications should avoid sports where bodily injury, with potentially life-threatening bleeding, might occur. Enjoy! I am now down to seeing my doctors every 3 years or so and have been doing very well. The guidelines do not address the frequency of surveillance for individuals with BAV and no enlargement of the aorta. Hes gained 25 pds . He was very talented at football. We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. Regarding activity restrictions, you would do best to rely on the advice of your sons doctor(s) who will be in the best position to know the relevant specifics. Bicuspid Aortic Valve Hi Dr Creswell, Today, echocardiography (ultrasound) for screening or diagnostic purposes for some other heart problem is the most common way that BAV is detected. On March 30, 2018, we learned that Arnold Schwarzengger required a second heart surgery. After an MRI, Ive been diagnosed with BAV and mild aortic coarctation. Some good points there, Craig. 2) He can lead a normal life & can continue his training with regular echocardiography control (once in a year). I would prefer not to stop. For athletes with mechanical heart valves, the most important consideration is usually about potential bodily injury while taking blood thinning medications. Whether 130 beats per minute is a good cut-off truly isnt known. I have bav with mild dilation of aorta 39mm. The Ross procedure borrows your sons pulmonary valve and uses it to replace his aortic valve and aorta. I had AVR exactly 1 year ago to the date. While I no longer due very strenuous activities, I still play softball, golf, kayak, ski, and do play hockey every now and again. I had a Medtronic Freestyle valve fitted in May 2002, did exactly as directed regarding exercise etc. Practice Essentials. These leaflets open and close to regulate blood flow from the heart into the aorta, and prevent blood from flowing back into the heart. Common symptoms include chest pain, shortness of breath, dizziness and fainting. 27yr old male. Probably wise to follow the advice of your doctors who know the details of your situation. We just dont know. Also I seemed to get quite sweaty the following hours after a hard training session. 2. A lot of people have it, she told Access Hollywood in 2009. Last echo measurements LDid 6.3cm z-score 2.4, LVIDs 4.1 cm z-score 2.0, LVPWd 1.2cm z-score 1.9, asc aorta Diam 4.0 cm z-score 5.8. Thank you for your time Dr.! In addition to the European guidelines, there is also an American set of guidelines published in the Proceedings of the 36th Bethesda Conference. And now my aortic root is 42 mm. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. My question here is what is the damage I can cause to my heart, mechanical valve, if I keep my heart rate at hi intensity levels? Bicuspid valves are quite common (1-2 percent of the population). From your reading, or even just here at the blog, youll know that its not an unusual story. Most probably not pericarditis cause I had it once so I know that pain type, but again, maybe its some other type. Ordinarily, race walking is considered to be in the same category of activity as long-distance running. At the USC Cardiovascular Thoracic Institute, we are dedicated to improving the statistics concerning cardiovascular and thoracic disease such as those once faced by the governor, said Starnes, who also serves as executive director of the Institute. Very often, follow-up CT scans and echocardiograms are needed every 6-12 months to keep track. Barb. Im not looking forward competitions nor marathons. I do not know aorta measurements. According to reports (and my new cardiologist), this congenital variation . As I mentioned in previous comment my recovery is going great. At this time, it is not known whether Arnold received the new valve using a surgical aortic valve replacement (SAVR) or atranscatheter aortic valve replacement (TAVR). Palace Insiders Say Prince William Is Already Furious About Prince Harrys Memoir Leaks, Prince Harry alleges Prince William attacked him over Meghan Markle in a new excerpt from, Scene Stealer: The True Lies of Elisabeth Finch, Part 1, Rupert Murdoch Knees Trump in the Balls While Hes Doubled Over Coughing Up Blood, By BG017/Bauer-Griffin/GC Images/Getty Images. Aortic valve stenosis: Your aortic valve narrows, reducing blood flow through it. Having a congenital heart defect means you are born with a problem with the heart's structure. Celebrities With Heart Disease - Celebrity Heart Health Survivors. Thank you sincerely for your time and information. James Cameron checks in from Pandora with a status report. New guidelines from 2015 are in accord with your doctors recommendations about vigorous exercise as well as periodic imaging to measure the aorta. "Until then, stay close.. The studies on Irbesartan for Marfans(I dont have Marfans) are showing some positive outcomes; and. Perhaps that info will give you some basis for discussion with your cardiologist and surgeon regarding the type of valve that is used for your re-replacement. I asked her when I get my valve replaced(it will have to be replaced sometime in the future) will they repair my aneurysm and to my surprise she said no. Consensus guidelines from the Proceedings of the 36th Bethesda Conference recommend: The first recommendation does not include the endurance sports. The thing that keeps me sane is that I can jump on a treadmill or go play basketball for a few hours and feel relatively normal. Required fields are marked *. Down side: durabilitythe borrowed valve doesnt last forever; it will deteriorate and need re-replacement at some point. Thanks in advance. Thank you very much for your answer. Less than one month ago Schwarzenegger was (virtually) hosting the Austrian World Summit of the Schwarzenegger Climate Initiative, which introduced speakers like Prince Charles, Jane Goodall, and Pakistani Prime Minister Imran Khan. In fact, in some people they can go undiagnosed for years. The doctor looked at the results and told me to limit physical activity (running), because it can lead to heart failure in future. I know I will need it replaced. At the age of 12, she had a procedure to widen her valve as her heart condition continued to have an impact. I cant distinguish if its muscle pain or somewhere inside chest, its not sharp or dull, somewhere in between. Bicuspid Aortic Valve with trivial AR. Bicuspid aortic valve with Marfan and other HTAD when the ascending aorta is dilated >45 mm. My surgeon basically said, Lets get you back to living your life. Cardiologists always say take it easy. I dont believe this has been well studied. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). Fox News anchor Bret Baier has a . Does the (unreplaced) aorta enlarge over time? Good to hear that youre doing well. Bicuspid aortic valve is a heart problem present at birth. My personal approach to endurance athletes in this situation would be to offer operation if the patient wanted to continue to participate in endurance sports (after operation) and was willing to assume the risks of operation. When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. Still no stenosis or regurgitation, aorta now 35 mm, he is 6 ft, 150 pounds. You are a very good man. I have question about your opinion about aortic valve regurgitation (no BAV) Aortic root is 4cm and currently waiting for a 6month check up to see how it`s going. Thanks for sharing an update. Benefits: long-term durability. Now, five months after surgery Im gradually returning to sport with 5km runs and kettlebell routine, push ups and pull ups (still feeling pressure in breast bone) no heavy lifting. Thank you so much for your reply. Unfortunately, I really cant point you to such studies. Seek different pediatric cardiologist/hospital (we have not seen a cardiologist yet)? My son was also complaining of shortness of breath with stairs mild and feels tired more easily. And, if so, how did things go? Thanks. E. G. I could bench 50lbs with no need to strain and hold my breath, which wouldnt result in a massive spike in blood pressure, but if I tried to bicep curl 50lbs it would do. http://www.energystretch.com . Celebrities with congenital heart disease Details Published: January 27 2016 . Your web site and the links have much good information. Still it puzzles me that for you as for me it seems to degrade more after the diagnosis for a condition we have since birth. September 13, 2017 1:00 PM. Dont see why HIIT should be excluded. We are now seeing moderate stenosis, hence replacement in the not too far distant future. I have recently had CT scan and MRI scan, following some chest pain experienced on track while doing marathon training. Aortic Stenosis Zdenko . Thank you to every doc and nurse on my team!". I know they really should get checked, and they will. What should i do? Activities are not usually restricted for athlete patients with mild aortic stenosis. Willie Moses Most patients can resume all of these activities by 2-3 months after operation. A 2nd opinion might help by bringing another set of eyes and ears to your problem. Review of the clinical records of 152 patients aged 20 years and older found to have a bicuspid aortic valve at autopsy revealed aortic stenosis in only 28 percent. They said that everything is working fine except that I have a slightly enlarged aorta and the very beginnings of an aortic aneurism which most likely occurred PRIOR to surgery as a result of the pressure over the years and my old BAV. On April 16, 1997, Arnold Schwarzenegger underwent elective heart surgery to replace a defective, congenital aortic heart valve. triangle chokes, other blood chokes) could be putting pressure on my heart and cause my aorta diameter to increase? I exercise, eat well and keep my weight down. Last week, the CBS This Morning anchor announced via his co-anchors Gayle King and Norah ODonnell that he would be taking a break from the show to undergo heart surgery. The doctor allows me to do moderate sport defined by her like not 20k each day; 20k per week should be fine. Almost half of BAV subjects develop different degrees of valvular dysfunction during their lifetime. Anyway, talk to a surgeon who understands quality of life means. He is very athletic. lessons) I was physically examined by a medical board at new Delhi for the post of a chemist in geological servey of India but they declared me unfit as I have BAV . I will update you all after his Friday appointment. Jeff/Doc, 6 weeks later Im still experiencing symptoms that (in the back of my mind) have me thinking about the BV issue. Aortic enlargement in patients whove had valve replacement for BAV can be a vexing problem. For these individuals, provided there is no other relevant heart disease, it may be appropriate to have follow-up echocardiogram and/or CT scanning every 2 years. Aortic regurgitation (also called aortic insufficiency), which is a leaky valve. I have appointment with a cardiologist on Friday but in the meantime i would like to know weather in case of surgery a replacement of the valve is definitely necessary or my condition still allows some options for a surgery without replacement. Im not sure theres enough information at hand to offer sound advice. What Is Bicuspid Aortic Valve Disease? Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. I'm new to this group, so I'll be rather short. The risk of BAV in children of parents with BAV is probably about 10%. I agree that its somewhat surprising that more detailed information isnt available. When you start seeing changes with regurgitation does it progress quickly? It is quite frustrating, Im running with some guys that have a hard time believing that I run a marathon. The first pic showed the action and comedy legend in a supine position with a thumbs-up, while the next three featured a lovely autumn walk, taking in the sights. I cant imagine life without activity, but Im not fool to risk my life, not any more anyway :). Thanks for my previous response a few weeks ago. Im 53. Now I take brisk walks and run on the treadmill only occasionally. I am wondering if you know anything about these drugs and how they can impact aortic growth? Arnold Schwarzenegger Helped Greta Thunberg Get a Tesla, Where to Watch the Biggest 2023 Awards Contenders. How long does it take for the homograft to completely heal? i.e. Thanks for the infoI really appreciate what you,have to say. no symptoms yet please help. I would like to thank you very much for providing me with your thoughts. With the blood thinning needed for a mechanical valve, serious bleeding may occur with injuries. Additional types of patients who should ask for a TAVR evaluation include: Bicuspid aortic valve patients who are experiencing symptoms. When I had my valve replaced I was told that it would have a 20 year ish life but I think it should exceed that. Hi again Dr. Creswell, In some cases, bicuspid aortic valve causes another condition called aortic valve stenosis. There have been reports of lingering effects (decreased function of the left or right ventricles) for several days after marathon runs. Hi, Further to this most recent discussion point I was advised that isometric exercises, such as planks and other pilates type activities, as I understand them, are perfectly safe with BAV. thanks for sharing all this interesting info. From afar, I dont have much to add. Average STS score was 1.7%. I have been given no restriction to date in any physical exercise as my valve is in decent condition. A bicuspid aortic valve is a common cardiovascular condition, affecting about 1% of the general population. The recovery from heart surgery can be hard to predict for any given patient, but we know that young otherwise healthy patients tend to do well.

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